"If you can't breathe, nothing else matters"


Life certainly is full of adventures and challenges at times.

Fourteen years ago I got the news that I had a very rare lung disease called Lymphangioleiomyomatosis (or LAM for short). While I probably had symptoms of LAM for a couple of years, at 22 after just graduating from university, I was given the news. After googling what it was, the first thing that came up was “a fatal disease affecting women of childbearing age,” which was a massive shock. Shortly afterwards were more scans and a lung biopsy, I ended up with a referral and an appointment at the lung transplant clinic. A trial of Sirolimus was suggested to try and slow the damage to my lungs and surprisingly, it increased my lung function by a significant amount. It meant I was able to live a relatively normal life for the next few years.

2E1A8003 Amber CMYK web Have the conversation today

Have you talked about organ donation with your loved ones?

2E1A8003 Amber CMYK web
Questions & Answers

Do you still have questions, or need answers?

braed rachel

Jill says donating Braedon's organs helped her grieving process and is something she would encourage all families to discuss.

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