"If you can't breathe, nothing else matters"


Life certainly is full of adventures and challenges at times.

Fourteen years ago I got the news that I had a very rare lung disease called Lymphangioleiomyomatosis (or LAM for short). While I probably had symptoms of LAM for a couple of years, at 22 after just graduating from university, I was given the news. After googling what it was, the first thing that came up was “a fatal disease affecting women of childbearing age,” which was a massive shock. Shortly afterwards were more scans and a lung biopsy, I ended up with a referral and an appointment at the lung transplant clinic. A trial of Sirolimus was suggested to try and slow the damage to my lungs and surprisingly, it increased my lung function by a significant amount. It meant I was able to live a relatively normal life for the next few years.

2E1A8003 Amber CMYK web Have the conversation today

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2E1A8003 Amber CMYK web
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Nothing prepares you for the shock of losing someone in such a sudden way.

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